Highlights:

News Briefs

In a controversial move, the FDA has quietly removed its draft guidance on clinical trial diversity, sparking concerns over inclusivity.

Feb 103 min read

Why do some people inherit disease-causing genes but show no symptoms?

Jan 213 min read

A groundbreaking study has linked the DDX53 gene, located on the X chromosome, to autism spectrum disorder (ASD).

Jan 203 min read

Join us this Rare Disease Day to advocate for an inclusive healthcare system.

Feb 284 min read

The TikTok ban in the US has far-reaching consequences, especially for the rare disease community.

Feb 265 min read

For many, Valentine’s Day is all about romantic gestures—but for those with rare diseases, it’s a powerful reminder to celebrate self-love f

Feb 145 min read

Discover the complexities of CHOPS syndrome, a rare genetic disorder impacting multiple body systems.

Mar 36 min read

Join us this Rare Disease Day to advocate for an inclusive healthcare system.

Feb 284 min read

Cushing’s Syndrome is a rare but serious endocrine disorder caused by prolonged exposure to high levels of cortisol.

Feb 74 min read

Heather F., co-founder of Level 5 Insights, is redefining healthcare market research with a mission rooted in empathy, inclusion, & advocacy

Jan 275 min read

Explore how Rare360 empowers the rare disease community through advocacy and trust-building.

Jan 225 min read

From personal experience to professional impact, Brittany Galante is transforming rare disease diagnostics for the hEDS community and beyond

Dec 18, 20245 min read