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The Rare360 Editorial Team
2 days ago6 min read
CHOPS Syndrome: Discovering the Complexities of a Rare Genetic Condition
Discover the complexities of CHOPS syndrome, a rare genetic disorder impacting multiple body systems.
The Rare360 Editorial Team
5 days ago4 min read
Rare Disease Day: A Call to Action for a More Inclusive Healthcare System
Join us this Rare Disease Day to advocate for an inclusive healthcare system.
The Rare360 Editorial Team
Feb 265 min read
Silencing Connections: The Impact of Social Media Bans on Rare Disease Communities
The TikTok ban in the US has far-reaching consequences, especially for the rare disease community.
The Rare360 Editorial Team
Feb 145 min read
Love Beyond Romance: Guide to Embracing Self-Care and Connection on Valentine’s Day
For many, Valentine’s Day is all about romantic gestures—but for those with rare diseases, it’s a powerful reminder to celebrate self-love f
The Rare360 Editorial Team
Feb 103 min read
FDA's Diversity Guidance Withdrawal Sparks Concerns Over Clinical Trial Inclusivity
In a controversial move, the FDA has quietly removed its draft guidance on clinical trial diversity, sparking concerns over inclusivity.
The Rare360 Editorial Team
Feb 74 min read
Navigating Hypercortisolism: A Guide to Understanding Cushing’s Syndrome
Cushing’s Syndrome is a rare but serious endocrine disorder caused by prolonged exposure to high levels of cortisol.
The Rare360 Editorial Team
Feb 59 min read
When Low Blood Sugar Strikes: A Deep Dive into Idiopathic Ketotic Hypoglycemia
Idiopathic Ketotic Hypoglycemia (IKH) is a rare metabolic disorder often overlooked in children.
The Rare360 Editorial Team
Jan 275 min read
Redefining Market Research with Empathy and Inclusion: Insights from Heather Flaherty
Heather F., co-founder of Level 5 Insights, is redefining healthcare market research with a mission rooted in empathy, inclusion, & advocacy
The Rare360 Editorial Team
Jan 234 min read
Respecting Boundaries: Why it's important for the Pharmaceutical Industry and Its Service Providers to Ethically Engage with Online Rare Disease Communities
Pharma companies must respect the privacy of rare disease communities on social media.
The Rare360 Editorial Team
Jan 225 min read
Repairing Trust and Supporting Community-based Advocacy: A Conversation with Rare360's Executive Director
Explore how Rare360 empowers the rare disease community through advocacy and trust-building.
The Rare360 Editorial Team
Jan 213 min read
The Genetic Puzzle Solved: Why Some People Stay Symptom-Free Despite Disease Genes
Why do some people inherit disease-causing genes but show no symptoms?
The Rare360 Editorial Team
Jan 203 min read
Breakthrough Discovery Uncovers a New Genetic Link to Autism Spectrum Disorder
A groundbreaking study has linked the DDX53 gene, located on the X chromosome, to autism spectrum disorder (ASD).
The Rare360 Editorial Team
Jan 33 min read
Study Unveils Pervasive Ableism in U.S. Mental Healthcare Settings
Ableism and systemic barriers in mental healthcare continue to challenge U.S. adults with disabilities.
The Rare360 Editorial Team
Jan 112 min read
Winter Wellness Guide: Herbal Remedies to Support Rare Disease Patients During the Colder Months
Discover natural herbal remedies to boost immunity and manage symptoms during winter for rare disease patients.
The Rare360 Editorial Team
Dec 30, 20249 min read
Breaking Down the Complexities of IC-MPGN: Symptoms, Diagnosis, and Management
Discover everything you need to know about Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN).
The Rare360 Editorial Team
Dec 18, 20245 min read
Championing Change: Brittany Galante on Bridging Gaps in Rare Disease Healthcare
From personal experience to professional impact, Brittany Galante is transforming rare disease diagnostics for the hEDS community and beyond
The Rare360 Editorial Team
Dec 17, 20247 min read
Understanding Fragile X Syndrome: Insights into the Most Common Inherited Cause of Intellectual Disabilities
Discover the complexities of Fragile X Syndrome, the most common inherited cause of intellectual disabilities.
The Rare360 Editorial Team
Dec 10, 20246 min read
Breaking Barriers: Addressing Economic Inequities Faced by Black and Brown Women with Disabilities
Systemic barriers rooted in race, gender, and disability result in significant economic and social inequities for disabled women of color.
The Rare360 Editorial Team
Dec 4, 20244 min read
Your Insights Matter: The Role of Market Research in Rare Disease
Market research studies play a transformative role in rare disease care by gathering insights directly from patients and caregivers.
The Rare360 Editorial Team
Dec 3, 20245 min read
Genetic Data for Sale? The Ethical Dilemma of 23andMe’s Financial Struggles
Once a trailblazer in genetic testing, 23andMe now faces financial uncertainty, sparking concerns about the future of its genetic database.
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