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The Rare360 Editorial Team
7 days ago3 min read
Study Unveils Pervasive Ableism in U.S. Mental Healthcare Settings
Ableism and systemic barriers in mental healthcare continue to challenge U.S. adults with disabilities.
The Rare360 Editorial Team
Dec 3, 20245 min read
Genetic Data for Sale? The Ethical Dilemma of 23andMe’s Financial Struggles
Once a trailblazer in genetic testing, 23andMe now faces financial uncertainty, sparking concerns about the future of its genetic database.
The Rare360 Editorial Team
Oct 29, 20245 min read
A Major Milestone for Disability Rights: DOT’s Historic Fine on American Airlines
The U.S. DOT recent $50 million fine against American Airlines marks a pivotal moment in the fight for disability rights in air travel.
The Rare360 Editorial Team
Oct 25, 20246 min read
The Overlooked Crisis: How Rare Eye Disease Patients Are Left in the Dark
Millions of adults on Medicaid lack essential coverage for routine eye care, creating a silent crisis for those with rare diseases.
The Rare360 Editorial Team
Oct 21, 20242 min read
The FDA’s Duloxetine Recall: Implications for Mental Health and Chronic Pain Patients
Thousands of Duloxetine Capsules have been recalled after N-nitroso-duloxetine, a cancer-causing impurity, was detected above safety limit.
The Rare360 Editorial Team
Oct 15, 20246 min read
Navigating the Mental Health Coverage Gap in the Rare Disease Community
Rare disease patients face unique mental health challenges, yet many struggle to access care due to insurance coverage barriers.
The Rare360 Editorial Team
Oct 3, 20244 min read
From CRISPR to Jumping Genes: The Next Breakthrough in Genetic Science
New research on "jumping genes" could lead to safer, more precise gene-editing techniques.
The Rare360 Editorial Team
Sep 24, 20244 min read
Medicare Prescription Payment Plan Explained: Lowering Costs for High-Priced Medications
The new Medicare Prescription Payment Plan will help reduce out-of-pocket drug costs and make medications more affordable.
The Rare360 Editorial Team
Sep 9, 20243 min read
FDA Approves First-Ever Epinephrine Nasal Spray (Neffy) for Treating Life-Threatening Allergic Reactions
Neffy, the FDA-approved epinephrine nasal spray, offering a groundbreaking alternative to injections for managing severe allergic reactions.
The Rare360 Editorial Team
Sep 9, 20244 min read
Vision Services Disparity: How Medicaid’s State-Level Policies Affect the US Rare Disease Community
Learn why expanding Medicaid vision coverage is crucial for the rare disease community and what policy reforms could help.
The Rare360 Editorial Team
Sep 5, 20243 min read
Digital Health in Rare Diseases: How Wearables are Transforming PNH Care
Learn how wearable technology, like Fitbits, is helping patients with PNH track their overall well-being.
The Rare360 Editorial Team
Feb 19, 20242 min read
FDA Extends Priority Review Period for Kresladi/ RP-L 201 in Treating Severe Leukocyte Adhesion Deficiency-I (LAD-1)
Explore the FDA's extension of the priority review period for Kresladi, a groundbreaking gene therapy for severe LAD-1
The Rare360 Editorial Team
Jan 18, 20243 min read
Milestone in Gene Therapy: Casgevy Approved for Transfusion-Dependent Beta Thalassemia
Explore the FDA's groundbreaking approval of CASGEVYâ„¢ the treatment of transfusion-dependent beta-thalassemia (TDT).
The Rare360 Editorial Team
Dec 12, 20233 min read
New Horizon in PNH Treatment: FDA Approves First Oral Drug
Explore the latest in PNH treatment with the FDA's groundbreaking approval of iptacopan (Fabhalta).
The Rare360 Editorial Team
Nov 6, 20233 min read
New Hope for Pediatric Patients: Bosutinib's Approval in Treating Chronic Phase Ph+ CML
Learn about Ph+ CML, its phases, and the FDA's approval of bosutinib for pediatric patients with chronic myeloid leukemia.
The Rare360 Editorial Team
Nov 1, 20233 min read
Assessing Safety and Effectiveness of Damoctocog Alfa Pegol in Hemophilia A Patients
HEM-POWR study shows damoctocog alfa pegol's promise, reducing bleeding and improving joint health in hemophilia A patients.
The Rare360 Editorial Team
Sep 21, 20232 min read
Late-Onset Pompe Disease: New Clinical Insights Pave the Way for Enhanced Quality of Life
A groundbreaking study offers hope to the LOPD community by revealing crucial clinical markers that could transform diagnosis and treatment.
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