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Rare Disease Day: A Call to Action for a More Inclusive Healthcare System
Join us this Rare Disease Day to advocate for an inclusive healthcare system.
The Rare360 Editorial Team
Feb 284 min read
Silencing Connections: The Impact of Social Media Bans on Rare Disease Communities
The TikTok ban in the US has far-reaching consequences, especially for the rare disease community.
The Rare360 Editorial Team
Feb 265 min read
Love Beyond Romance: Guide to Embracing Self-Care and Connection on Valentine’s Day
For many, Valentine’s Day is all about romantic gestures—but for those with rare diseases, it’s a powerful reminder to celebrate self-love f
The Rare360 Editorial Team
Feb 145 min read
Respecting Boundaries: Why it's important for the Pharmaceutical Industry and Its Service Providers to Ethically Engage with Online Rare Disease Communities
Pharma companies must respect the privacy of rare disease communities on social media.
The Rare360 Editorial Team
Jan 234 min read
Genetic Data for Sale? The Ethical Dilemma of 23andMe’s Financial Struggles
Once a trailblazer in genetic testing, 23andMe now faces financial uncertainty, sparking concerns about the future of its genetic database.
The Rare360 Editorial Team
Dec 3, 20245 min read
A Major Milestone for Disability Rights: DOT’s Historic Fine on American Airlines
The U.S. DOT recent $50 million fine against American Airlines marks a pivotal moment in the fight for disability rights in air travel.
The Rare360 Editorial Team
Oct 29, 20245 min read
Recognizing the Unseen: The Hidden Battles of Invisible Disabilities
This article delves into invisible disabilities, highlighting their complexities and the need for greater understanding and empathy.
The Rare360 Editorial Team
Oct 23, 20247 min read
The Vital Role of Service Dogs in Healthcare: A Lifeline for the Rare Disease Community
Service dogs are more than just pets; they are essential allies for individuals living with rare diseases.
The Rare360 Editorial Team
Oct 19, 202410 min read
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